Research Interests

Quality of life for children with critical chronic illness and their families; narratives as shaping identity and meaning-making for those living with rare diseases, chronic illness, or disability; clinician-patient/parent communication surrounding critical care decisions; pediatric palliative care; social media support groups as a space where those affected by rare disease seek a sense of community; post-traumatic growth for parents of children with critical illness; community driven participatory research, mixed-methods research.

Select Publications

Neumann, M.L., Allen, J.Y., Kakani, S., Ladner, A., Hall Rauen, M., Weaver, M.S., Mercer, D.F. (Under Review) A beautiful struggle: Parent-perceived impact of short bowel syndrome on child and family wellbeing.

Neumann, M. L.*, Weaver, M. S.*, Lord, B., Wiener, L., & Hinds, P. S. (2021). Care Provider Behaviors That Shape Parent Identity as a "Good Parent" to Their Seriously Ill Child. Palliative medicine reports, 2(1), 113-121. (*shared first co-authorship)

Weaver, M. S., Neumann, M. L., Lord, B., Wiener, L., Lee, J., & Hinds, P. S. (2020). Honoring the good parent intentions of courageous parents: A thematic summary from a US-Based National Survey. Children, 7(12), 265. (*shared first co-authorship)

Weaver, M. S., Lukowski, J., Wichman, B., Navaneethan, H., Fisher, A. L., & Neumann, M. L. (2020). Human connection and technology connectivity: a systematic review of available telehealth survey instruments. Journal of pain and symptom management.

Weaver, M. S., Jurgens, A., Neumann, M. L., Schalley, S. M., Kellas, J. K., Navaneethan, H., & Tullis, J. (2021). Actual solidarity through virtual support: A pilot descriptive study of an online support group for bereaved parents. Journal of Palliative Medicine.